Down’s syndrome | Stray Thoughts

A variety of good reads found this week:

When God Used a Stutterer, HT to Challies. “Must limitations and weaknesses keep us from effective ministry? And how should we think about others in the church who have glaring, limiting imperfections?” This is a neat story.

If I Have Matching Dishes, But Have not Love . . . HT to Challies. “If I have matching dishes but have not love, my kitchen cupboard becomes a higher priority to me than the most important person to me in this life.”

People Over Perfection: 5 Tips to Help You When Tiny Distractions Take Over. “Have you ever found yourself in a friend’s living room when you suddenly noticed a picture on the wall that was crooked? Did it occupy your attention for too long, leaving you unsettled and distracted until you walked over and straightened it?”

You’re Beautiful, HT to Challies. “In this month’s letter, I share my personal journey with female beauty standards—a topic that’s been on my mind ever since my daughter was born. I share what life was like growing up with contradicting beauty standards, and how they shaped my insecurities as an Asian Australian woman. I then explore how my new faith, motherhood, and entering my late 30’s has redefined my perspectives on outward beauty.”

Why Christian Men Need Friendship, Not Just “Accountability,” HT to Challies. Yes, yes yes! I’ve always felt there was something off, even artificial, about “accountability partners,” and this helps explain why.

The 10%, HT to Challies.”What does that say about us as a society? We, with the requisite number of chromosomes, determine your fate before we even meet you, before we experience one of your open-hearted hugs or witness your exuberant spirit. How far have we fallen, that we will only welcome you if your test results declare you worthy of our care?”

Why Are There Four Gospels? A great illustration helps answer this question.

You Can’t Do It Alone. “Productivity is not the solution to all of your problems. That’s the promise of secular productivity, isn’t it? Peace, order, simplicity, abundance—the life you want—is just on the other side of one simple system/technique/app/framework.”

The Theology of Work and the Stay-at-Home Mom: Embracing the Value of Our Calling, HT to Redeeming Productivity. “It’s easy to feel like our work doesn’t “count” because we’re not bringing home a paycheck. We don’t get the flashy title that comes with being a high-powered professional, and sometimes, it feels like society only values work that earns money. But if we believe, as Christian moms, that God has called us to this specific work, does the absence of financial gain truly define our calling’s worth?”

God Is Writing Your Story: You Need to Tell It. “God has given each one of us a story. It may not be as dramatic as Corrie ten Boom’s or as screen-worthy as Louis Zamperini’s, but each and every one can be used by God to connect with someone and to ultimately point them to Jesus. And we’re not supposed to keep these stories to ourselves.”

The LORD may not give gold, but He will give grace: He may not give gain, but He will give grace. He will certainly send us trial, but He will give grace in proportion thereto. We may be called to labor and to suffer, but with the call there will come all the grace required.
— Charles Spurgeon

My Emily by Matt Patterson is a family’s story of a young daughter born with Down’s Syndrome who is then diagnosed with leukemia at the age of two.

After the joy of Emily’s birth, the Pattersons were shocked to learn that she had Down’s Syndrome. Once they had a chance to absorb that, though, they found it didn’t really change anything. Emily was a little behind other children in her development, but she was developing, and “she did possess two characteristics many Down’s children are blessed with – a never-ending smile and a heart so very full of love.”

But a late-night run to the ER for a fever when Emily was two, and a question about some dots on her leg, led to blood tests which revealed Emily had acute lymphoblastic leukemia.

Matt relates what Emily and the family went through as she underwent a 100-day course of chemotherapy with its attendant side effects, went into remission, relapsed, and had a bone marrow transplant.

A major part of a journey like this is wrestling with God about why He allowed it, especially for a little child, and Matt shares some of that as well.

Perhaps He sent this little, unassuming angel to instruct me and many others about what’s truly important in life. I believe she taught us not to take one single day for granted, showing a greater appreciation for family, faith, and friends and all that we have been given and blessed with.

…Some would look at Emily’s life and think that a child born with Down’s syndrome has little hope for a meaningful life. Throw in the diagnosis of leukemia and that little hope turns into no hope whatsoever.

I disagree.

Emily’s life, with all its imperfections, had great meaning. Because of how many people she touched, I realize that we are far more than what we can accomplish. We are the very thumbprints of God.

Matt goes on to say:

Incidents in our lives – big or small – develop our character. The Bible says, “We know these troubles produce patience. And patience produces character.”

Our lives, as short as they may be, are a test. And one of the biggest tests we can endure is how we respond to those moments when we don’t feel the presence of God in our lives. I believe deeply that one of God’s greatest gifts is to teach us there is a purpose behind every single one of our trials and problems.

Treat them as a gift, an opportunity to to move forward and draw closer to God. Problems often times compel us to look to God and count on Him rather than ourselves.

This is a very short book at 98 pages and at the moment is available for free for the Kindle app. I was touched at many points in the book and the quote about every life with its imperfections having meaning and purpose and that we “are more than what we can accomplish” particularly spoke to me.

(This review will also be linked to Semicolon‘s Saturday Review of Books.)